Family Support & Web Resources
Parents of Premature Babies A nonprofit foundation for parents, family, and friends with children born 6 weeks or more before their due date. Email discussion lists, conferences, resource materials. Also sponsors Preemie-L mentors program, a one-to-one support program for parents of premature infants.
Community: Premature Baby/Premature Child Emphasis on the long-term effects of prematurity. Includes an email support list, on-line forum, information about how to be a "parent advocate" for your premature infant.
Institute for Patient- and Family-Centered Care: Includes information sections that encourage the development of family support networks within your community. Links to parenting resources for parents of premature infants.
Children's Medical Ventures: Offers many items for preemies including buntings, clothing, journals, pacifiers, tiny tubs, books, and helpful resources.
The Preemie Store: Great selection of items for preemies including birth announcements, books, diaries.
March of Dimes 111 South George Street, Cumberland, MD 21502
The March of Dimes website includes an entire page of links to helpful information for families with NICU babies. The guides begin with Parenting in the NICU and lead you through the process to the day you leave the NICU and beyond.
If your baby has a special need, additional websites are available. Just ask your nurse!